… is a kind-hearted kid that will step in and help—wherever he sees a need. He lights up any room with his positive and energetic attitude. He’s a great example of hard work and determination. (Basically, he is the best friend you could ask for.) He has enjoyed various forms of art since he was young.
EZRA has Hypermobile Ehlers Danlos Syndrome (hEDS). EDS causes his connective tissue and collagen to be defective. Some of the things that effects are joint dislocations and subluxations, chronic pain, and fatigue. He has learned a great deal about compassion and empathy, and has a passion for working with other kids that have rare diseases, terminal illnesses, and severe disabilities. He enjoys volunteering for Mascot Miracles Foundation and exudes pure joy when spending time with the kids at their events. He’s a Senior in High School and we can’t wait to see what more he accomplishes in life.
Learn more about Ehlers-Danlos syndrome (hEDS) here:
• https://www.ehlers-danlos.com/what-is-eds/
• https://www.edsrf.org/
Ezra